Who are we?
We are a team of researchers at the Oxford Institute for Nursing, Midwifery and Allied Health Research (OxINMAHR) in Oxford and have set up a community group to help us shape the health care research carried out in your local area. The health care research may involve working alongside some of the hospitals/GP practices/other health care providers in Oxfordshire. We would like to invite you to join our group so we can work with you to develop and carry out research projects that are important to you and can improve the health of your local community.
We are committed to involving patients, service users, family members, carers and other members of the public in prioritising, designing, conducting our research studies. We are interested in talking to people from a wide range of ethnicities, cultures and sexualities, as well as mental health service users, disabled people and single parents.
What is patient and public involvement?
Patient and Public involvement is about members of the public working in active partnerships with researchers and research organisations. It’s also known as PPI.
The term ‘public’ includes patients, potential patients, carers and people who use health and social care services, as well as people from organisations, such as community groups, that represent people who use services.
We use the National Institute for Health Research’s INVOLVE definition of public involvement. NIHR INVOLVE is the national advisory group on public involvement:
“Public involvement in research is research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.”
Involvement can include:
- identifying research topics and questions of importance to patients and service users
- offering advice and feedback as a member of a project’s steering group
- commenting on and helping to develop research materials such as information sheets for patients, interview guides or questionnaires.
- helping with recruitment of research participants
- helping to share research findings and get research evidence into practice
How will it work?
You do not need to have any research skills or medical knowledge. All you need is some experience of health care services, no matter how big or small.
We will meet regularly throughout the year, and if a research study matches your own interests we will invite you to get involved. If you choose to get involved you will be given more information about what you need to do at this stage. You will be paid for your time for your involvement in the individual studies.